Friday, May 18, 2012

2 Birthday Celebrations!!!!

Well, I am f i n a l l y ... posting Seth and Gloria's Birthday Party pictures.



The gifts!

The Food!

The Family!

The Cake!


The Personal Cake!

The Cupcake! and The Icing Thief!

The Yummies!

The Mess!


The Stand!


The Sit!

The Unwrap!

The SAMMO!!!!!


The Dad and Sethster!


The Bib!!!


The Books!


The Gift!


The Reader!!!

The Music Station!

The end!

Nissan NV - 12 Passenger Van

We have long been Nissan lovers. 

We have owned two Altima's and a Mercury Villager - which was the same as the Nissan Quest.  Our minivan was a rock ...

Nissan has an awesome new passenger van ......       12 PASSENGER VAN!!!!!!!!!!!!!

I don't mean to covet, but boy-oh-boy this is sweet!!!  All the seats have headrests ... this is HUGE!!! Airbags galore!!!


Can you see me driving it? 

It would add a certain element of cool that our current van lacks! 

I wonder if Nissan would like to make a donation to a worthy cause?

http://www.nissancommercialvehicles.com/build/model/NV+Passenger


Wednesday, May 16, 2012

Cochlear Implant Q & A

How is Seth's hearing now? 

In November, Seth had an Auditory Brainstem Response test, also known as an ABR.  His results showed no response at 105 decibles, which was the limit on the testing equipment.  It is likely that his hearing loss is more profound than 105 decibels.  We were told if he was standing beside a jet plane, he would not hear it.  You can see in the audiogram below, a jet it plotted at about 120 decibels.

His hearing loss is bilateral, meaning both ears.  He is wearing bilateral, in the ear, hearing aids.  His testing, with hearing aids, shows reaction to sound at 80-90 decibels.  This is still considered prodound deafness.




At what point do you make the decision to go with an implant rather than hearing aids.
Since, Seth's degree of deafness is considered profound, even with high powered hearing aids, cochlear implants become an option to help him hear.

How invasive will the procedure be, what about recovery?
This answer is taken from our surgeons website.
The procedure is an outpatient surgery that takes about an hour and a half. It is performed under general anesthesia. The surgery is performed through an incision behind the ear. The surgery consists of removing part of the mastoid bone and placing the cochlear implant.

Will the implant last his entire life, can it be upgraded without replacement?
Likely, the implant will need to be replaced at some point.  No one knows for sure.  CI in children were started in the late 80's.  Some of those children are now having replacement CIs.  Yes, they are designed to allow upgrades.  They are also designed for easy removal of the magnet if there is a need for the child to have an MRI.

How will it affect any hearing that he has now, like when you wear glasses your natural eyesight gets a little worse as you depend on the lenses.
Typically, any hearing the child has will be lost from the implant.  Seth will only have one ear implanted to start.

For a brief explination, this video talks a bit about the procedure and highlights Seth's surgeon.

Thanks for answering any of these questions, I'm really interested in learning more.
You are welcome and thanks for asking!

Sunday, May 13, 2012

Cochlear Implant Selections and Q&A Prep

Last week, we selected Seth's cochlear implant devices. 

We have chosen to go with Advanced Bionics .... that kinda makes me giggle .. my bionic boy!!!!!

They have what we believe to be a really great implant and kid friendly processor. 

The implant is called the HiRes90K™. 



We selected the Neptune™ processor.  We liked this device because it is waterproof, has a good impact resistance rating and has many wearing option.  The controls are removable, so there is no way for the setting to be changed without it happening purposefully. 



We were able to select many wearing options.  We selected the arm band, a lanyard, and a harness.  It also comes with a pouch to put the processor in.  The pouch can be used in conjunction with all three wearing options selected above.  There is also a clip, that can easily clip to the back of his shirt.





We got to pick fun colors in some of the equipment, such as  ... Ocean Blue and Sand Castle.  Other not so fun colors included; Black, White and Dark Sienna Metallic.


Once he is implanted and his mapping is being done, we are going to go with the ClearVoice™ sound processing choice.  Which helps you hear speech better.  We want to focus on Seth understanding speech. 



There is also an option for a FM Device that would take my voice "directly" to Seth's ear.  It is normally used by a public school teacher in a classroom.  We will be looking at this option down the road as Seth progresses with the implant.

AB’s iConnectTM accessory provides a cable-free connection to the FM systems most commonly used in schools, such as Phonak's Dynamic FM.   Designed to easily snap into place, it won’t fall off the ear or interfere with head movements.

With the iConnect, your child can listen comfortably and naturally, concentrating on the important lessons being taught in the classroom instead of fussing with cables or wires or continually repositioning their equipment.

Q & A Time ....

Do you have questions about Seth's upcoming cochlear implant?  If so, please leave a comment and I will address them (to the best of my non-bionic ability -hehe) in a future post

Chronicling Kindergarten

I cannot believe my little Faith will be starting Kindergarten.  I am going to chronicle her kindy year here. 

We started her first project yesterday; a My Father's World Remembrance Quilt.  We made a quilt for each of the big kids in their kindy year rather than making the badges that My Father's World recommends.  In each unit, a letter, an object and a biblical concept is taught.  For example, "S" is the Sun with the biblical concept of Jesus is the light of the world. 

The green fabric is for the front of the quilt, the paisley fabric is the back of the quilt and the ribbon will make the squares --- yep, it is a cheater quilt. :)



... And just for fun and because I love the so much, here are the big kids quilts.


Joy's Quilt

Gracie's Quilt

Bub's Quilt

Wednesday, May 9, 2012

365 day 130

Gracie reads to Seth. He thinks he is Mork. Leave a comment if you know who Mork is :)

365 day 129

Mega mug!!!!

Friday, May 4, 2012

365 day 122

Seth helps clear the table.

365 day 121

Sorted books!!!!

365 day 120

Love!

365 day 119

God brought them together.

365 day 118

Who does not love IHOP!?

365 day 117

Water table from Aunt Sissy. Huge hit!

365 day 116

Cleaning his mess :)

365 day 115

Planning to paint my horrible cabinets. What do you think of this color combination?

365 day 114

Squishy indeed

365 day 113

It feels so squishy!

365 day 112

There were ten in the bed and the little one said ....

365 day 111

Dude!!!!

365 day 110

Hope found a treasure at the store :)

365 day 109

New table.

365 day 106

Picnic

365. Day 108

Gracie lost another tooth!

365 day 105

Seth plays!

363 day 104

Daddy Devotions

Monday, April 23, 2012

A Thank You and A New Diagnosis

Thank you all for praying for Seth's MRI.  He did GREAT!!!! The anesthesiologist only used one drug vs. the three that were used with his last sedation.  The difference was night and day.  Praise God!


The MRI results have confirmed that Seth has Cerebral Palsy.  This is our second surprise diagnosis.  Hopefully, it is our last.  I spoke with the neurologist on the phone to review the test results.  We go to see her in person in a few weeks.   One of her suggestions was ABA Therapy - nothing formal, just me doing it at home.  I am also in the process of making my own version of the PECS system to try and help him communicate. 

He turned SEVEN over the weekend!!! We had a fun party and that blog is in the process ... along with our nine month home update.

Friday, April 13, 2012

365 day 103

BUBBLES!!!!

365 day 102

Ice cream, you scream, we all scream for ice cream!!!!

365 day 101

Noah and Seth playing with Play Doh. Seth did attempt to eat it. Lol.....always eating everything

365 day 100

Gloria is not too sure about this lettuce wrap.

365 day 99

Who doesn't love Math U See???

365 day 98

Grace wrote her first bible study.

365 day 97

Easter presents. Yep. Three baskets for nine kids!

Hopefully, we are teaching them the value of sharing and non-entitlement.

365 day 96

He is risen.

365 day 95

Tuesday, April 10, 2012

WOOOO HOOOO Gloria is TWO

Gloria is two today!!!!!!!

I think of her second birthday and then think to last year on her first birthday.

Last year she laid alone in an orphanage.  That is it.



We were sent several baby pictures of Gloria from a friend, Tracey.  
In this picture, Gloria is seven months old and Tracey just finished feeding her a bottle. 






In June of  last year, we saw her picture for the first time. 
Catherine was at the orphanage adopting Francesca and Victoria and sent her picture to us.
Little did we know, Catherine was introducing us to our daughter!!!! 






Today, Gloria has a family that loves her and values her. 

This morning, she awoke to a mommy (daddy leaves for work really, really early) and eight brothers and sisters telling her happy birthday and giving her hugs and kisses.  We all hooted and hollered HAPPY BIRTHDAY GLORIA... about one hundred times. We celebrated her.  Aunt Sissy came with a good morning balloon celebration!











For some reason, my heart is heavy for her birth mother today. 

Gloria did not arrive to the orphanage until she was 40 days old. 

From what is known ... Gloria was full-term, good birth weight, decent apgar scores.  Nothing in her history indicates that she needed to be in the hospital for forty days.

During those first forty days, I wonder  where she was.  Was Gloria at home with her mother?  Did her mother nurse her?  Did she have her mother's love for forty days?  Did her mother take Gloria to her one month old baby check up and there was told that she had down syndrome? 


I wonder about Gloria's mother ...


~Does she remember today is the day she gave birth?
~Does she know Gloria is two?
~Does she wonder what Gloria is doing today?
~Does she know that she has a family that loves her?
~Does she wish Gloria were still with her?
~Does she regret refusing her?
~Does she miss her?
~Does she wonder if the doctors told her a lie?
~Does she know children with down syndrome are fearfully and wonderfully made?
~Does she know Jesus?
~Does she realize children are valuable?
~Does she read this blog?

There is a man who tracks down families of children adopted from Ukraine.  The locating of the families is fairly easy since we know their name, passport number and region where the children were born.  I have been considering hiring him to locate Gloria's birth family ... but what if they reject her again?